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What is Research Advocacy?
Patients, families, and caregivers partnering with researchers from The University of Kansas Cancer Center to re‐define cancer research.
National Cancer Institute (NCI) Research Advocacy 101 features brief videos on the following topics:
• Introduction to Video Series • History of Advocacy• How Advocates Benefit Cancer Research at NCI• Human Faces of Cancer at NCI• Research Advocates Improve Cancer Care at NCI • Roles of Research Advocates at NCI • Research Advocates at NCI• How to Become a Research Advocate at NCI
The Cancer Information and Support Network (CISN) provides brief discussions of key points about advocacy and research advocacy beyond NCI:
• Types of Patient Research Advocacy • What Is Research Advocacy? Why Is It Important? Who Are Research Advocates? • Types of Research and How Advocates Can Benefit Them • Important Advocate Issues in Drug Development • Successful Advocate Involvement in Research Projects • Advocate Review of Scientific Grant Applications • Becoming a Research Advocate • Training in Research Advocacy
Involving Advocates in Cancer Research
The University of Kansas Cancer Center Bench To Bedside: Research Advocate Partnerships (21.5-minute video)
Learn the benefits of research/advocate partnerships and how engaging research advocates helps inform and shape cancer research to optimally reflect what is important to patients.
Want to Learn More About Research Advocacy? Click here for more resources that can enhance your understanding of research advocacy, research, and cancer.
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