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Issues Important to Patient Research Advocates

Read about the issues important to patient resource advocates including health data basics, the associated financial burden of cancer treatment, and the toxicities of medical treatment.

PIVOT logoPatients, families, and caregivers partnering with researchers from 
The University of Kansas Cancer Center 
to re‐define cancer research.

Health Equity: PLAN4Health
This toolkit provides resources to help users better understand health equity, health inequalities, and the social determinants of health.

Financial Burden/Toxicities of Medical Treatment

Health Data Basics

To Screen or Not to Screen?

  • Cancer Screening, Part 1: Principles of Screening
    This 11-minute video, produced by Oncology for Medical Students in April 2017, aims to explain what a screening test is, the major issues surrounding screening tests, and the list of criteria that define a good or acceptable screening test, as described by Wilson and Junger in 1968.
  • Cancer Screening, Part 2: Validity - Sensitivity and Specificity
    This 9-minute video, produced by Oncology for Medical Students in May 2017, describes measures of screening test validity (how good it is), sensitivity (how well it correctly identifies people with the disease), and specificity (how well it correctly identifies people without the disease).
  • Cancer Screening, Part 3: Sensitivity/Specificity Tradeoff
    This 7.5-minute video, produced by Oncology for Medical Students in May 2017, describes the issue of the sensitivity/specificity tradeoff.

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